Hypermobility and Ehlers-Danlos syndrome In patients with persistent and widespread muscle pain.Laser therapy for hypermobility.

Some people are much more flexible than average — pathologically flexible. Hypermobile patients get hurt easily — especially repetitive strain injuries — and have a lot of chronic body pain.1 Hypermobility seems be linked to all the bafflingly stubborn, strange medically unexplained problems: fibromyalgia, chronic fatigue syndrome, temporomandibular joint syndrome, and inflammatory bowel disease.

And there’s a lot of overlap with myofascial pain syndrome here too. Hypermobility could be one of the systemic issues that drives the formation of trigger points — perhaps just due to the exhaustion caused by constantly striving to stabilize joints, or just a neurological response to pain arising from other sources. We can only speculate: this has never been studied. All my comments on the relationship between hypermobility and trigger points are just educated guesses. If you are experiencing muscle pain, joint pain, tenderness and fatigue, then Sunstone Laser Pain Clinic, Tamworth, Staffordshire, can offer Laser therapy, Shockwave therapy and massage therapy for hypermobility.

Let’s get a little more specific than “hypermobility.”

There are many types of hypermobility, with a wide range of severity, from trivial “party trick” flexibility (“double-jointed”) with no apparent consequences — especially early in life — all the way to full-blown genetic disorders of the connective tissue with many serious medical consequences. There’s a huge grey zone in the middle of under-diagnosed and under-treated people, who are definitely having problems but may never figure out why or what to do about it.

Hypermobility pain relief

Hypermobility spectrum disorders (HSD) are a group of conditions defined by joint hypermobility — unexplained joint looseness. Sunstone Laser Pain Clinic in Tamworth offers complementary therapy to help relieve the symptoms of hypermobility HSD.

HSD is a bucket diagnosis for people with symptomatic hypermobility, but without a connective tissue disorder that explains it, like Ehlers–Danlos syndrome or Marfan syndrome. Most connective tissue disorders are relatively obvious, but EDS can easily evade diagnosis, making it a prime suspect in many cases of chronic pain…

Ehlers–Danlos syndrome (EDS) is a closely related group of conditions with known genetic causes that includes hypermobility along with lax and fragile tissues that injure easily and heal poorly (especially skin), with many consequences. Sunstone Laser Pain Clinic in Tamworth offers specialised massage therapy for Ehlers–Danlos syndrome (EDS)

The most common form of EDS is hypermobile EDS(hEDS), and it is the only form of EDS without a known genetic cause. It’s tricky to distinguish hEDS from HSD.2 However, hEDS is probably associated with serious rheumatic diseases (i.e. psoriasis, ankylosing spondylitis, rheumatoid arthritis)… and this is fresh science and likely to be missed, “perhaps due to a lack of gravitas surrounding the hEDS diagnosis.”3

Given the musculoskeletal troubles that we know hEDS can cause, it is reasonable to guess that less severe hypermobility (HSD) may also be both clinically important and yet even less obvious.

So, hEDS/HSD is serious … but it’s not taken seriously. Even doctors who know about hEDS/HSD usually assume that it’s mostly a minor condition, and would definitely not refer patients on to a rheumatologist. And even if they did, many rheumatologists probably wouldn’t take it seriously either! They tend to be preoccupied with more obvious and dire cases. Here at Sunstone Laser Pain Clinic, we understand EDS is considered an “invisible” illness: patients look healthy but struggle with pain and fatigue that can make simple tasks like cooking or getting dressed feel unmanageable. We offer laser pain relief therapy along with massage therapy to help you manage your hEDS symptoms.

To sum up, hypermobile-type Ehlers–Danlos syndrome (hEDS) is the most common major sub-type of EDS, a connective tissue disease without a genetic marker, which probably causes a lot of body pain but isn’t well understood and is rarely diagnosed. And if you have joint looseness that cannot be explained by hEDS or any another connective tissue disease, that might be hypermobility spectrum disorders (HSD), which is probably almost as clinically important as hEDS but even less well understood and even harder to diagnose.

Taking hypermobility seriously

Collectively, HSD/hEDS are probably quite common. If you suspect that hypermobility could be at the root of your troubles, I strongly recommend that you do some more reading and pursue a diagnosis as best you can. Hypermobility is probably one of the major possible causes of extremely stubborn myofascial pain syndrome.

Or, much worse, the idea of trigger points could be completely unrelated, a red herring. I see a lot of people get very excited about the idea/hope that trigger points explain their pain, and might be treatable. In many cases that excitement is justifiable, and relatively harmless even if it’s wrong. But it could also send someone on a long-term detour from a correct diagnosis that they really need! Trigger points are probably a commmon complication of hypermobility, and so learning to treat them probably isn’t going to be a total waste of time … but for some hypermobile patients, chasing trigger points could be a pointless, harmful distraction.

Another common sign of hypermobility is unusually stretchy skin.

REF: Hypermobility and Ehlers-Danlos syndrome In patients with persistent and widespread muscle pain

Paul Ingraham

Sunstone Laser Pain Clinic, Sutton Road, Tamworth www.sunstoneclinic.co.uk

Laser Pain Relief Clinic

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Complementary and alternative medicine (CAM) is treatment that falls outside of mainstream healthcare.